A RAY OF HOPE

HELP FREE CHILDREN FROM RARE DISEASES

In 2012, the Russian government officially adopted the term “rare diseases” for the first time. Starting in 2013, the government began to provide funding for the treatment of 24 of these diagnoses. Retinoblastoma, for example, is a rare cancer that starts in the retina, at the back of the eye. It is usually diagnosed before a child reaches the age of 3. Although it is the most common type of eye cancer in children, retinoblastoma occurs in only 1 of every 20,000 births. If the tumor is contained within the eye, more than 95 percent of treated patients can be cured. Ectromelia affects children born with missing or underdeveloped bones. Three-year-old Valeria's right leg did not function at all. Her mother brought her to Florida, where American orthopedic surgeon Dr. Dror Paley reconstructed this little girl's leg in three phases over twelve months. Valeria can now walk and run and lead a normal life!

RACF raises funds to cover the costs of transportation, food, housing, medical evaluation, testing, hospitalization, and other medical services needed to help Russian children with rare diseases receive treatment at American hospitals until there's a solution for these children in Russia. Help make more miracles now!